Update (9/17)
We just got back from UT Southwestern Medical Center in Dallas a couple of days ago and had a good visit with some very knowledgeable specialists. The purpose of the visit was to check out the neuro side of things a little more extensively.
We do know that although the symptoms are still going on, they are much better than before. Maegan is able to get up and around (until her legs swells/turns awesome colors from the clots) and is even going to class this semester! There were times just a couple of months ago when I thought she wasn't going to make it...and yet here she is with more strength and energy than she has had in the past year!! How awesome is our God?
This 3rd EMG was by far the most extensive and thorough to date and was performed by 2 of the neuromuscular specialists. They affirmed that her muscles appeared free of a myopathy (like neuromyotonia) and everything was looking normal. We are still waiting to hear back on some lab work and then we'll be able to ask the doctor more about which direction to head next.
The biggest win of this trip was a referral to see a hematologist at Southwestern next week. We have been concerned lately about the clotting issue in general and have tons of questions that we just can't find answers to around here.
It looks like things are moving in a new direction for us. The stresses that we both encountered over the past few months felt like they added years to my life, but they have been lifted from my shoulders. If you haven't seen Maegan since she was in the hospital, you probably wouldn't recognize her today! She is doing so much better! We know more now than we have so far, but still have many things left to discover. Please keep praying that we can trust in God for out every need and wait for the answers to come in His time.
Thanks for the prayers, hugs, tears, messages, encouragement, thoughts, love and support!
-Philip and Maegan
We do know that although the symptoms are still going on, they are much better than before. Maegan is able to get up and around (until her legs swells/turns awesome colors from the clots) and is even going to class this semester! There were times just a couple of months ago when I thought she wasn't going to make it...and yet here she is with more strength and energy than she has had in the past year!! How awesome is our God?
This 3rd EMG was by far the most extensive and thorough to date and was performed by 2 of the neuromuscular specialists. They affirmed that her muscles appeared free of a myopathy (like neuromyotonia) and everything was looking normal. We are still waiting to hear back on some lab work and then we'll be able to ask the doctor more about which direction to head next.
The biggest win of this trip was a referral to see a hematologist at Southwestern next week. We have been concerned lately about the clotting issue in general and have tons of questions that we just can't find answers to around here.
It looks like things are moving in a new direction for us. The stresses that we both encountered over the past few months felt like they added years to my life, but they have been lifted from my shoulders. If you haven't seen Maegan since she was in the hospital, you probably wouldn't recognize her today! She is doing so much better! We know more now than we have so far, but still have many things left to discover. Please keep praying that we can trust in God for out every need and wait for the answers to come in His time.
Thanks for the prayers, hugs, tears, messages, encouragement, thoughts, love and support!
-Philip and Maegan
posted by p-melt at
5:42 AM
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