Update (6/22)
Sorry that it took so long for another update. I wanted to to say first of all how grateful we are for all of your help and support! We could not have made it through the past 3 weeks without our families, church family and friends.
I wish I has good news to report, but unfortunately God's timing is not our own. After spending 16 days in 3 different hospital rooms and visiting with 2 specialists, we left feeling more discouraged than ever. We found out this past Thursday that Maegan was going to be discharged because insurance wasn't convinced that she needed to stay under the care of a hospital. This was extremely frustrating to hear because she was in the exact same condition she was in when we left Nacogdoches (6/11). With God's strength, physical therapy, and modern medicine, Maegan was able to ride in our car and spend the night in a non-hospital bed.
The next day, we went to see the absolute best neuromuscular specialist in Texas. After about an hour with this doctor, he gives us the news we had been dreading the most. He told us that although something was undoubtedly wrong with her, it was beyond anything he would be able to treat. He ordered one more blood test and said that the results may or may not reveal anything else. We got back into town late that night and have been laying low and resting.
Although Maegan is out of the hospital, she is by no means healed. We are confused and frustrated and have absolutely no answers. In fact, we know less now than we did before seeing the specialist. Every doctor and specialist we have seen so far agrees that something is definitely wrong, however no one can seem to find it. We have been told that it can be anything from an active infection that is attacking her nerves and muscles to an autoimmune disease that is affecting her muscles. Maegan is able to get out of bed and move around but (for now) has to use a walker to get anywhere. I am going to have to go back to work this week and I'm trying to get everything ready so that I can leave Maegan and try not to worry about her too much.
We are still not out of the woods as far as needs, although our small group has been awesome! While we were in our luxury suite in Houston, a few of the wives came over and cleaned our house! The prayers that have been lifted up for Meagan have been heard. God is slowly taking away everything that we are leaning on so that we have no choice but to trust Him completely.
Sometimes if you pray for patience, God gives you tough situations to grow your patience instead of just handing it over. In the same light, we feel as if God is giving us situations to learn to trust Him instead of giving us an easy way out. Please continue to pray that we find the right doctor(s) so that we can find out exactly what is wrong with Maegan.
Keep praying expecting God to do something incredible.
-Philip & Maegan
I wish I has good news to report, but unfortunately God's timing is not our own. After spending 16 days in 3 different hospital rooms and visiting with 2 specialists, we left feeling more discouraged than ever. We found out this past Thursday that Maegan was going to be discharged because insurance wasn't convinced that she needed to stay under the care of a hospital. This was extremely frustrating to hear because she was in the exact same condition she was in when we left Nacogdoches (6/11). With God's strength, physical therapy, and modern medicine, Maegan was able to ride in our car and spend the night in a non-hospital bed.
The next day, we went to see the absolute best neuromuscular specialist in Texas. After about an hour with this doctor, he gives us the news we had been dreading the most. He told us that although something was undoubtedly wrong with her, it was beyond anything he would be able to treat. He ordered one more blood test and said that the results may or may not reveal anything else. We got back into town late that night and have been laying low and resting.
Although Maegan is out of the hospital, she is by no means healed. We are confused and frustrated and have absolutely no answers. In fact, we know less now than we did before seeing the specialist. Every doctor and specialist we have seen so far agrees that something is definitely wrong, however no one can seem to find it. We have been told that it can be anything from an active infection that is attacking her nerves and muscles to an autoimmune disease that is affecting her muscles. Maegan is able to get out of bed and move around but (for now) has to use a walker to get anywhere. I am going to have to go back to work this week and I'm trying to get everything ready so that I can leave Maegan and try not to worry about her too much.
We are still not out of the woods as far as needs, although our small group has been awesome! While we were in our luxury suite in Houston, a few of the wives came over and cleaned our house! The prayers that have been lifted up for Meagan have been heard. God is slowly taking away everything that we are leaning on so that we have no choice but to trust Him completely.
Sometimes if you pray for patience, God gives you tough situations to grow your patience instead of just handing it over. In the same light, we feel as if God is giving us situations to learn to trust Him instead of giving us an easy way out. Please continue to pray that we find the right doctor(s) so that we can find out exactly what is wrong with Maegan.
Keep praying expecting God to do something incredible.
-Philip & Maegan
Matthew 21:22
"If you believe, you will receive whatever you ask for in prayer."
posted by p-melt at
2:56 PM
5 Comments:
Philip and Maegan,
First of all know that both of you are in our thoughts and prayers daily. Next, remember that we are only a few blocks away and that we are more than willing to help out in any way. Please let Maegan know that she can call me anytime!
Kristi
Philip and Maegan:
You probably don't know me but husband Rick and I have been at Grace for 27 years. I am so sorry for what you'all are experiencing, and can identify to some degree. Last year I contracted a viscious bacterial infection of the colon, C.difficlie. Although very familiar to doctors, it kept recurring. I was in the hospital 7 times and still had the infection after 7 months. In desperation, we went to the TOP of the chain....Mayo Clinic in Rochester, MN. It sounds this would be so expensive....it is not. Other than a plane ticket there, insurance covers everything, and you are diagnosed as an outpatient. In a week, they can do more than it would take 2 months to do here as an outpatient. The very latest research indicated a course of treatment, that cured the year-long infection. I thank God every day for helping us to know that it was worth the trip to MN, for they have doctors that have more brains than you can imagine.
It takes a doctor's referral and sometimes a small wait, but it is worth going. Call me at 552-4426 if you are interested in hearing about the incredible system there.
I will be praying for both of you.
Sherry Braden
Philip,
This is Emily, from Maegan's old work at HR. When ya'll get back to Nac, would you like us to bring over some food? We would love to, and know that having a good, home-cooked meal can make things just a little big easier. Let us know. Maegan knows my desk number (Since it used to be hers! ha). I'll be checking back in with ya'll! You are both in all our prayers.
I'm so sorry to hear about what you guys have been going through. I feel terrible...Please know that I will be praying for you guys and I am confident that Maegan will get better because she is a fighter. Let me know if I can do anything for you guys. I'll be in Nac this weekend.
Take care,
Aurora
Dear Philip and Maegan,
What a joy to know so many people are praying for you. May you feel lifted up and refreshed by His Spirit. I pray for complete healing and restoration in Meagan's body, mind and spirit - and that you would be encouraged, and strengthened as well. Psalm 91
Blessings,
Ben Davis
Band Director, Lindale JH
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