2 Steps Forward...
This hospital almost put us in cardiac arrest today.
Communication is important. We met with the neuromuscular specialist today and spent about 30 minutes getting her all caught up on Maegan's progress of the past year. She immediately recognized what was going on and plans to order tests. She tells us that we can expect to be out of here in about 5 days.
Rewind 2 days. The attending doctor who has been over Maegan's stay says that the pneumonia is under control and from her end sees us being discharged by this Wednesday. Although this is great news, this doctor does not know nor understand the severity of her muscle disorder. Apparently, this discharge time is the word that gets spread around to all of the resident doctors and nurses.
This afternoon we get word that they are coming to pick Maegan up for an EMG at 2:00. Two hours later we are still waiting and Maegan gets sick to her stomach. While she is indisposed, the hospital staff brings by a stretcher to take her to have the test done. After waiting 5 minutes, they tell me they must leave and send another stretcher. Apparently in a hospital this size, there is a strict scheduling system. No problem. The transport tells me someone else will be by in 10 minutes. Again, no problem. 2 minutes later, Maegan is feeling better and we wait patiently.
The bad news comes about 20 minutes later from our nurse. We are told that since we weren't ready to leave when they first came by, the tech (who is contracted) left and won't return until next Monday. Apparently, word never got to the specialist and by the time the nurse called about coming over, they said it was too late. We have been waiting for this moment for over a year now and we are told that it's not gonna happen.
On top of this our specialist seems to think that Maegan is being discharged tomorrow and we can just hop in the car and head back next week sometime. Even though Maegan is in the EXACT SAME CONDITION that she was when we left Nacogdoches. The only thing that has improved is her pneumonia and that could have easily been treated without spending 5 days in this hospital.
Communication is important. We met with the neuromuscular specialist today and spent about 30 minutes getting her all caught up on Maegan's progress of the past year. She immediately recognized what was going on and plans to order tests. She tells us that we can expect to be out of here in about 5 days.
Rewind 2 days. The attending doctor who has been over Maegan's stay says that the pneumonia is under control and from her end sees us being discharged by this Wednesday. Although this is great news, this doctor does not know nor understand the severity of her muscle disorder. Apparently, this discharge time is the word that gets spread around to all of the resident doctors and nurses.
This afternoon we get word that they are coming to pick Maegan up for an EMG at 2:00. Two hours later we are still waiting and Maegan gets sick to her stomach. While she is indisposed, the hospital staff brings by a stretcher to take her to have the test done. After waiting 5 minutes, they tell me they must leave and send another stretcher. Apparently in a hospital this size, there is a strict scheduling system. No problem. The transport tells me someone else will be by in 10 minutes. Again, no problem. 2 minutes later, Maegan is feeling better and we wait patiently.
The bad news comes about 20 minutes later from our nurse. We are told that since we weren't ready to leave when they first came by, the tech (who is contracted) left and won't return until next Monday. Apparently, word never got to the specialist and by the time the nurse called about coming over, they said it was too late. We have been waiting for this moment for over a year now and we are told that it's not gonna happen.
On top of this our specialist seems to think that Maegan is being discharged tomorrow and we can just hop in the car and head back next week sometime. Even though Maegan is in the EXACT SAME CONDITION that she was when we left Nacogdoches. The only thing that has improved is her pneumonia and that could have easily been treated without spending 5 days in this hospital.
Rest assured that we will be meeting with both doctors tomorrow in an effort to bridge the communication gap.
posted by p-melt at
10:04 PM
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